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About IBMF

The Inclusion Body Myositis Foundation (IBMF) is a 501 (c) (3) not-for-profit, private-operating foundation that was founded in Massachusetts in April 2011.  As a private-operating foundation, IBMF conducts research directly, as well as works with other research institutions.

Board of Directors

Dr. Steven A. Greenberg, MD, Director
Dr. Greenberg is a neurologist who specializes in the care of patients with the disease Inclusion Body Myositis. He is an Associate Professor of Neurology at Harvard Medical School. He directs an IBM research program at the Brigham and Women's Hospital and the Children’s Hospital Informatics Program at Children's Hospital Boston.

David and Nayda Utterberg, Directors
David and Nayda Utterberg have a strong interest in inclusion body myositis. Diagnosed with IBM in 2005, they contributed to equipping research for IBM and have supported research of the disease since 2006.

Scientific Advisory Board

Stefano Gullá, Ph.D.
Stefano Gullá is a Principal Scientist at Pfizer Inc. and a Project Leader at the Centers for Therapeutic Innovation (CTI). CTI was established in August 2010 as a new model to drive innovation in BioTherapeutics R & D by translating basic science from academic investigators into the clinic.

Stefano brings extensive knowledge of drug discovery from early to late stages. As a project leader he has succeeded in advancing projects from the idea stage through development. Stefano has expertise in translating basic ideas to clinical probes for autoimmune diseases having led biomarker discovery and candidate selection campaigns.


The Foundation’s research activities and needs are greatly enriched by our affiliations with reputable medical institutions in the country.
As a one-of-its-kind foundation, IBMF integrates these affiliations and builds unique collaborative relationships to drive IBM research.

IBMF works extensively with the following institutions:

Recent events

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